September 2005

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Nine flat months

The night of the 24th/25th September marks 9 months since the siezure that started in the early hours of Christmas day last year, a siezure which caused such a sharp deterioration less than 2 months into Ladan’s recovery. Extra prayers for Ladan would be appreciated on this occasion.

I would like to give an inadequate mention here of Mr. Alaeinia who was in Newcastle when Ladan fell into a coma and visited her, and whose wife and son (Arash) have continued to visit Ladan and to give support to the family while Mr. Alaenia has been back in Iran.

Last week I heard that Mr. Alaenia had a short heart attack as he left a shop in Iran and as a result he fell into a coma, this week the even sadder news has reached me that he has passed away and there is a memorial meeting for him in Newcastle tonight (Saturday 24th) which I intend, of course, to attend.

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Ladan moves on

A couple of weeks ago, on September 1st, Ladan moved from the Newcastle General Hospital to the rehabilitation unit of The Hawthorns in Peterlee, a small town near the North Sea coast and about 25 miles south of Newcastle. This was move was sprung on us quite suddenly and is intended to be temporary while waiting for a bed at another rehabilitation centre in Newcastle to become available. Ladan has a nice room in Peterlee, pictures of which can be seen here on webshots, and the staff are all very friendly. Ladan herself has been quite cold and very sleepy since we moved there, physically she is showing some minor signs of improvement but as for even the most basic appearances of obeying commands or communicating she is not staying awake long enough for any seemingly successful interactions to be repeated, and without repetition there is no way of distinguishing between coincidental reflexes and deliberate responses. Unfortunately this change cannot be fuuly appreciated by the rehab staff in Peterlee.

From a rehabilitation perspective I have been sadly unimpressed with the slowness of any action besides physiotherapy. Recently we were informed that once they have established even a basic awareness of the outside world, such as some response to sound, they can work with that. It has taken the Primary Care Trust a ridiculous number of months to approve sending Ladan somewhere that can begin a scientific assessment to see how much awareness she already has and even now, after more than two and a half weeks in a rehabilitation centre, such assessment has not begun. The Hawthorns are aware of our concerns and are trying to speed things up.

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