In my last update about Ladan I mentioned that I was hoping to try a Parkinson’s medication called Levodopa with Ladan because it has been found to reverse minimally conscious state in a number of people around the world. I had managed to find somebody who served on a coma recovery board in the United States who was a consultant in Argentina with experience in using the medication and this consultant was kind enough to give me recommended doses and other relevant information. When we came to starting the trial our doctor pointed out that the doses were higher than anything she had seen recommended for use in Parkinson’s disease and so, in case of any problems, we would not be able to go higher than half the recommended dose. We decided to continue as sometimes the lower dose has the desired effect, today was the last day on that dose and we are now back on a lower dose for a few days before stopping with the medication completely. I will write in more detail about this when the medicine has been stopped, and I will include mention of some encouraging observations, but there has been no obvious major change in Ladan’s condition as a result of the medicine to date.
Friday, just gone, was an important day for me. It was exactly one year on from Ladan becoming very ill, which turned into one of the worst events of my life. The following day, the 18th October, Ladan was rushed to hospital and was clearly struggling. Her condition worsened over the next 20 hours and the doctors where doing nothing at all. Eventually, after a lot of talking about whether they should do anything, they stepped in and prescribed a medication that she has an allergy to. It took a while before Ladan was on the right medicine and recovering… and even when her chest started recovering her treatment was such that she had terrible pressure sores all over the back of her body… and this was with myself and my mother-in-law being there 24*7 and pressing for Ladan to get the care she needed when required. There were other factors that made it an even worse day, and ironically the date had a personal significance which meant I wanted to spend some of it very peacefully relaxing with Ladan while enjoying my favourite soft drinks… but Ladan wasn’t well enough for it to be relaxing in the end.
This year, then, I wanted the day to be something more special, so I arranged to take Ladan back to the flat (where I sleep a little at night) for the afternoon. It was just the two of us this time. It was so peaceful. No mater how quiet you try to make things in the nursing home there is always a tv or a loud conversation, or some rushing in the hallway outside, keys jangling, trolleys rolling… always something you can hear… and the chair I am sat on right now, next to Ladan, is functional but not good for really relaxing in. Being relaxed with Ladan by my side, listeneing to some favourite tunes, looking through a few old photos, it was relaxation like I had not had in a very long time. The staff at the home also commented on how relaxed Ladan was when we returned.
The cold weather is setting in now and I am really hoping we don’t have to face another hospital nightmare this year. Right now, Ladan thankfully seems well and settled.